Tips for Remaining Confident as a Teenager with Psoriasis

I'm really proud of my 17-year-old son, not only because he is super smart and already has his career with GCHQ mapped out in his mind, but because he is living with a long-term chronic skin condition and he does it with such good humour.  You'd be forgiven for looking at that photo above and thinking he is just a pretty normal teenage lad, perhaps a bit geeky or a nerd, but there doesn't look as if there is anything out of the usual, does there?

However, look a bit deeper and you'd see red or scaly white patches covering most his body. Why? Because he has plaque psoriasis. 

Living with Psoriasis

Until JJ started to develop psoriasis three years ago it wasn't something I knew much about. I had no idea that it is estimated around 2 - 3% of the UK population are suffering with it (according to the UK Psoriasis Association), and it's only in the last year that I've seen just how bad it can get, both on JJ and by joining some online support groups. 

Psoriasis is a particularly difficult skin condition as there is no cure for it, and it presents differently on each person. I'm also learning that what works to helps relieve it at one point may stop working, and there is a massive range of treatments to choose from. It can be quite overwhelming if I am entirely honest.

JJ's psoriasis started off on his back, behind his ears and a patch above his left eye, then over time it has spread and worsened. Whenever I read about psoriasis there is always a description of it flaring up and being worse for a while and then subsiding again. Sadly, this hasn't been the case for JJ, the psoriasis on his body has been progressively getting worse over the last year or so. The plaques on his face do seem to go down with topical steroid creams but we are really trying to limit the use of those.

You can see the from the zoomed-in photos below the reality of how psoriasis can look when you are up close. JJ's daily reality is a scalp that itches and flakes excessively leaving him with 'dandruff' shoulders, red or scaly white patches on his face and his body, constant moisturising to help take away the tightness, itchiness or even pain of his skin, a floor that needs hoovering almost as soon as you've just done it and bedclothes that end up covered in emollient. 

He doesn't have the luxury of most teenage boys, that of choosing if he has a skincare regime, without looking after his skin he'd be uncomfortable all the time.

Learning to Live with Psoriasis

Photo by Anastasiia Ostapovych on Unsplash

{This is a collaborative post}

Psoriasis is a little-known and sometimes taboo disease to suffer with, and I think that until you or someone close to you has it, your understanding on the profound impact it can have on a person's life is severely limited. 

About three or four years ago my son started to develop some red patches on his upper back and on his face, slowly they got bigger and then the skin started to thicken and it would look like he had white scales on him. This, of course, prompted a visit to our GP, who thankfully was wonderful and prescribed some steroid cream. After a couple of months without progress, she referred my son to a dermatologist to get an expert opinion.

After a few months wait we saw the dermatologist and he recommended that JJ wash with an emollient, moisturise twice a day and use more potent steroids on his patches of psoriasis, by this point, it had also spread to his upper arms. He also had to stay on the lower potency steroids for his face and make sure he had adequate breaks so his skin did not thin too much in this delicate area.

A skin biopsy was taken to check what type of psoriasis it is that my son has and it was thought that as he had skin damage (such as his teenage acne) the body was responding with rapid cell growth and he was ending up with psoriasis plaques (patches). Sadly over the last couple of years, it has progressed quite a lot and he now has psoriasis covering most of his body. Thankfully he doesn't seem too worried by it, but I know that as a 17-year-old lad it will only be a matter of time before he will wish it wasn't there!