Monday, 16 July 2018

The Juvenile Arthritis Research (JAR) Project - Did you know Children can have Arthritis too?

Richard and his daughter Trinity, who suffers from JIA

I’m so pleased today to be able to feature a guest post on my blog. I’m not sure how many years it is that I’ve known Rebecca from The Beesley Buzz blog, but it is a quite a number, and she is one of those women who never fails to inspire and have an encouraging word for everyone. Back in 2015 she discovered that her young daughter had Juvenile Idiopathic Arthritis and it has been harrowing to see what Trinity must go through to be able to live a (more) normal and pain reduced life.

I was so excited to hear from Rebecca back in January this year that her husband was taking an exciting (and of course scary) step by starting the Juvenile Arthritis Research project. Richard is doing something incredible to make a difference to the lives of children who suffer from JIA and I’m delighted to have him share with you here today. Really, did you even know that children could suffer from arthritis? I certainly didn’t.


What is Juvenile Idiopathic Arthritis (or JIA)?
JIA is diagnosed in children and young people under the age of 16 and is a different disease to adult-onset rheumatoid arthritis, and entirely different from age-related osteoarthritis. The term ‘idiopathic’ means that, despite a number of theories, the exact cause of JIA is currently unknown.

Many people are not even aware that children can get arthritis. Yet JIA affects around 15,000 children under the age of 16 in the UK. At present, there is no cure.

JIA is an autoimmune disorder where the body starts to attack the joints, causing inflammation, pain, discomfort and reduced mobility. Left unchecked, JIA can lead to other health conditions as the immune system attacks other organs, as well as permanent disability and long-term health implications. Many children with JIA suffer from uveitis, where the immune system attacks the eyes; if not stopped this can lead to permanent vision loss and blindness. Some forms of JIA lead to systemic inflammatory damage, where other organs are damaged and, in the most severe forms, this can be fatal.

I founded Juvenile Arthritis Research (JAR) to find a cure for Juvenile Arthritis. With the support and endorsement of leading academic researchers, the JAR project works collaboratively yet independently to analyse data and information from a wide range of different scientific disciplines and research fields. By bringing together the disparate sources of information, we believe that we will be able to piece together the clues necessary to fully understand the disorder and develop a cure.

Saturday, 14 July 2018

Visiting Paris with the Paris Pass - Was it Worth it?

arc di triomphe header

At the beginning of July I travelled to Paris with my Mum and brother for my Mums 70th birthday treat. We only had two full days in the city with travelling time on the two days surrounding them and having now returned home I wish we’d had three clear days for exploring, as Paris is just so vast and there is a crazy amount of things to do, especially included with your Paris Pass.

What is a Paris Pass you might be wondering? 
Well as the name suggests it is a pass that gives you access to most every attraction in Paris as well as a Paris Visite travel card for use on the metro, rail, tram and bus. I say most every attraction as there are a couple of exceptions, like the Eiffel Tower and the catacombs but it is very comprehensive and there are also a load of special shopping and restaurant discounts that you can take advantage of too. 

You can buy a Paris Pass for 2,3,4 or 6 days and there are differing prices for children (4-11 years), teens (12-17 years) and adults (age 18 plus).

The Adult price ranges from €131 for a 2 day pass to €244 for a 6 day pass
Teens - €81 - €135
Children - €44 - €75
So, as you can see the price per day gets better when you buy a longer pass but of course it depends how many days you'll be in Paris for.

Paris Pass

Thursday, 12 July 2018

Reasons to be Cheerful - Paris, Transition and the Circus


It's been another busy week for me and it doesn't look as if the next few weeks are going to be any different. There seems to be so much to fit in at the moment, which is a bit frustrating as I'd quite like to chill and take some time before the kids break up for six weeks, but c'est la vie, what will be, will be!

Viva La France
Last Thursday morning I headed off to London to meat my Mum and brother so we could catch the Eurostar over to Paris for a few days. It was incredibly hot and we had issues with seats, queues and delays on the Eurostar but in general we managed to have a great few days celebrating my Mums 70th birthday.  We packed loads in our days and I particularity loved going up the Eiffel Tower, taking a river cruise, riding the open top bus and seeing some awesome works of art at the Musee d'Orsay. Our apartment in Bercy Village was stunning too.


Tuesday, 10 July 2018

Bracing Your Family For An International Move

Image thanks to Pexel

They say moving is stressful. Why do they say this? Well, because it’s resoundingly, absolutely and completely true. If you have moved home before you're most likely nodding in agreement and if moving does not stress you in the least, then you would probably enjoy a very lucrative and successful career as a special forces operative, because it seems almost nothing could phase you.

Not only is moving house a monumental organisational task, but you must also emotionally calibrate yourself to your new surroundings, and attempt to stay positive throughout the whole affair. It’s uprooting the anchor of your life to move on to another place entirely, sailing the seas over uncharted territory until you can place your anchor in a sturdy place once more.

If moving within the bounds of your current understanding is somewhat difficult, then consider moving across national or international borders. Even if you have a great degree of familiarity with the new culture, moving to a new country entirely can sometimes lead to culture shock. The flow of life is different from place to place, and so sometimes it can take a little while to adapt.

For some tips to both brace your family for an international move and then execute the process effectively, consider the following:

Thursday, 5 July 2018

Reasons to be Cheerful - Family, Holidays and Friends #R2BC


Happy Thursday friends. I’m sorry I’ve been so lapse on the reasons to be cheerful front, it’s not that I’ve been miserable, I’ve just been super busy.

So much has been happening and much of it is good, I did have a couple of weeks where I felt really low and I wasn't even sure why but I seem to have worked through that and come out the other side. Praise the Lord.

I feel like a could write a number of posts as there is so much to be thankful for but I’ll go with a nice long list to keep it simple and easy to read. Here’s five weeks of gratitude for you -
  • We had an ace family holiday in the South of France over May half-term. I’d definitely go back to Eurocamp at Club Farret again.
  • My Mum and Dad came to stay at the cottage in the grounds of our home for a week and it was lovely spending time with them and we went out for lots of yummy food too.
  • The girls had an inset day and I went to a local farm attraction with them and loads of people from our community and it was a fabulous day out.